2009 Survey Results

View Entire Slide Show

Introduction
Sex of Patient
% Multiple Hydrocephalus Diagnosis in a Single Family
Relationship of Family Members with Hydrocephalus to the Patient
% of Hydrocephalus Cases Diagnosed during Pregnancy
% of Patients Where Hydrocephalus Was Diagnosed Soon After Birth
Birth Method for Children Diagnosed with Hydrocephalus After Birth
Hydrocephalus Diagnosis
Type of Hydrocephalus Diagnosed
Causes of Hydrocephalus in Reporting Population
Age When Patient was Diagnosed with Hydrocephalus
Age when Patient was First Treated for Hydrocephalus by Surgical Means (Shunt or ETV)
Current Age of Hydrocephalus Patient
Average Number of Revisions by Age Group
Action Taken at the Time Hydrocephalus was Diagnosed
Common Shunt Placements
Manufacture of Shunt(s) Implanted in Reporting Population
Type of Shunt Valve Currently Implanted
Number of Times Adjustable Valve Required Re-Programming
Casual Factors for Revision
Casual Factor of Revision Expressed as % of Total Revision for Reporting Population
Was an ETV Performed instead of a Shunt Revision?
Was ETV successful?
Common Physical Complaints Attributed to Having a Shunt
Common Causes for Headaches
Frequency of Headaches for Hydrocephalus Patients with Shunts or ETV's
Frequency of Headaches for Hydrocephalus Patients with Shunts or ETV's - Adults (26 and Older)
Severity of Headaches for Patients with Shunts or ETV
Average Duration of Respondents' Headache / Migraine
Primary Drug Used for Headache Control
Secondary Drug Used for Headache Control
Memory Problems for Respondent Population
Changes in Seizure Activity Since Being Treated for Hydrocephalus
Changes in Mobility After Being Treated for Hydrocephalus
Changes in Gross Motor Skills Since Being Treated for Hydrocephalus
Changes in Fine Motor Skills Since Being Treated for Hydrocephalus
Changes in Vision Since Being Treated for Hydrocephalus
Changes in Response to Touch Since Being Treated for Hydrocephalus
Changes in Emotional State Since Being Treated for Hydrocephalus
Ability to Maintain Same Activity Level Since Being Treated for Hydrocephalus
Highest Level of Education Attained by Patient
Highest Level of Education Attained by Patient - Age 16 to 50
% of Hydrocephalus Patients Able to Continue Employment After Diagnosis and Treatment