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Our Organization |
Info on Hydrocephalus |
Treatment of Hydrocephalus |
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Survey Results |
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Our Organization |
Info on Hydrocephalus |
Treatment of Hydrocephalus |
Articles & Stories |
Guestbook |
Survey Results |
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Guestbook |
The 2009 Hydrocephalus Survey results are posted!
Our next Hydrocephalus Conference will be held in Spring 2011.
The National Hydrocephalus Foundation needs your support!
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| Name: MILKY JOY SANTIAGO | Posted: 2009-09-24 03:30:27 |
| E-Mail: milkysantiago@yahoo.com.ph | Location: Qeuzon City, Philippines |
| My name is Milky Joy Santiago from the Philippines who happens to have a sister(Kiara Sophia Santiag/2 yrs old) with a diagnosed case of hydrocephalus. She underwent from an operation third time and will be needing another one by this time, the same problem which is VP SHUNT malfunction. I am just wondering why is it happened? What is probably the reason is it happening? Is it the doctor who has a problem? My sister is 2 years old now, her first operation was when she is 7 months old, she is diagnosed to have a hydrocephalus when she was two months old. After 6 months of her operation she suffered VP SHUNT malfunction so the doctor revised it, then after 5 months it happened again and do the same procedure, and until now she's not yet recovering. Her stomach enlarged because of the fluid in her brain goes down to her stomach and never drain. Can you please help me? What is the best thing to do? The doctor said he will take out the shunt and will never replace again because she might suffer the same problem, is that the right thing to do? We are not financially lucky to carry the medical expenses of her. For any help you may contact me @ milkysantiago@yahoo.com.ph/09167218036 Please help us.. |
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| Name: MILKY JOY SANTIAGO | Posted: 2009-09-24 03:28:50 |
| E-Mail: milkysantiago@yahoo.com.ph | Location: Philippines |
| My name is Milky Joy Santiago from the Philippines who happens to have a sister(Kiara Sophia Santiag/2 yrs old) with a diagnosed case of hydrocephalus. She underwent from an operation third time and will be needing another one by this time, the same problem which is VP SHUNT malfunction. I am just wondering why is it happened? What is probably the reason is it happening? Is it the doctor who has a problem? My sister is 2 years old now, her first operation was when she is 7 months old, she is diagnosed to have a hydrocephalus when she was two months old. After 6 months of her operation she suffered VP SHUNT malfunction so the doctor revised it, then after 5 months it happened again and do the same procedure, and until now she's not yet recovering. Her stomach enlarged because of the fluid in her brain goes down to her stomach and never drain. Can you please help me? What is the best thing to do? The doctor said he will take out the shunt and will never replace again because she might suffer the same problem, is that the right thing to do? We are not financially lucky to carry the medical expenses of her. For any help you may contact me @ milkysantiago@yahoo.com.ph/09167218036 Please help us.. |
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| Name: Keith Johnson | Posted: 2009-09-24 02:29:42 |
| E-Mail: keithjohnson2936@sbcglobal.net | Location: United States |
| I would like to know can anyone out there tell me or give me a guess as to how many people in the United States have hydrocephalus? | |
| Name: Lillian Rivas | Posted: 2009-09-14 19:13:38 |
| E-Mail: rivaslsanch11@aol.com | Location: Los Angeles |
| I have an angel named Sophie whom was diagnose while I was still pregnant at 32 weeks of gestation with Congenital Hydrocephalus.. My family and I were devestatede we didnt know what it was. All hope was lost, yet in this time of pain and uncertainty we found hope. Five weeks and 4 days later Sophie was born 8lbs and 6oz.. Very fragile and barely holding on to life, but willing and able to live. Now she is our Day and Night. She is a happy and loving 26month old girl who loves life and her family. She is our angel... Smart, loving, friedly, talkactive, and very cheerfull.I give thanks to my doctor who always encourage me and my family with positive thoughts. God bless you | |
| Name: Debbi Fields | Posted: 2009-09-11 21:02:58 |
| E-Mail: debbifields@nhfonline.org | Location: Lakewood, CA |
| LORETTA - this note is for you and I'm hoping you will check the board soon. Please contact me at our office. I have the knowledge you are looking for and the experience. Debbi Fields Executive Director |
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| Name: Ginger | Posted: 2009-09-10 21:06:51 |
| E-Mail: ginger_dawn@tds.net | Location: Kentucky |
| Hello Everyone , I have had hydrocephalus since birth , i have a vp and lp shunt. but my main question right now is for the adults on here with hydrocephalus,..has anyonw with hydrocephalus been pregnant and had trouble with there shunts or hydro during pregnancy...i am 14 weeks pregnant and i was just wondering this ..if you can help please email me at my email address or i will check back on here shortly...thanks alot | |
| Name: Tammy Gloyd | Posted: 2009-09-09 07:43:34 |
| E-Mail: | Location: |
| Ok, forget it, I don't think I know how to type or read anymore! My post below has a typo too! | |
| Name: Tammy Gloyd | Posted: 2009-09-09 07:42:01 |
| E-Mail: tammygloyd@yahoo.com | Location: Wisconsin |
| I have to add to my post below: My daughter HAS hydro, no HAD hydro - yeah, that would be nice if it were gone! Not likely! It would be nice to say that someday! |
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| Name: phil | Posted: 2009-09-04 06:36:37 |
| E-Mail: pastorey@hotmail.com | Location: england |
| hi all, my son has had hydrocephalus since he was six month old and was fitted with a VP shunt after a Third Ventriculostomy. he is now eight and has just had it revised as the fluid going into the peritoneal was not absorbing into his body. the neurosurgeons have changed it to a VA shunt now and after a few hickups he is doing fine. does anyone else have a VA shunt or know of anyone who has as i would like to know how they are doing. cheers phil |
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