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Our Organization |
Info on Hydrocephalus |
Treatment of Hydrocephalus |
Articles & Stories |
Guestbook |
Survey Results |
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Our Organization |
Info on Hydrocephalus |
Treatment of Hydrocephalus |
Articles & Stories |
Guestbook |
Survey Results |
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Guestbook |
The 2009 Hydrocephalus Survey results are posted!
Our next Hydrocephalus Conference will be held in Spring 2011.
The National Hydrocephalus Foundation needs your support!
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| Name: MICHELLE | Posted: 2010-01-09 20:33:00 |
| E-Mail: michelle_gouard@yahoo.com | Location: ILLINOIS |
| HELLO! MY NAME IS MICHELLE, AND I HAVE A NIECE THAT WAS BORN IN OCTOBER 2007, AT AROUND 24 WEEKS SHE HAD A 50/50 CHANCE OF MAKING IT. WELL SHE BEAT THOSE ODDS, WITH ONE EXCEPTION, SHE HAS HYDROCEHALUS. SHE WAS DOING FINE, JUST A LITTLE DEVELOPMENTALLY DELAYED. SHE COULD SIT UP BY HERSELF, HOLD HER BOTTLE, FEED HERSELF, WAVE HI AND BYE, AND SAY DADA, SMILE AT YOU AND A LOT OF OTHER THINGS.WELL IN JULY OF 2009, SHE WAS SHOWIN SIGNS THAT HER SHUNT WASNT WORKING PROPERLY. SO MY SISTER TOOK HER TO THE HOSPITAL AROUND MIDNIGHT AND THE DOCTOR SAID HE WAS GOING TO DO HER REVISION IN THE MORNING. WELL A SHORT TIME LATER, MY SISTER NOTICED HER CHILD WAS BEGINING TO TURN BLUE AND SHE ASKED THE NURSE WHAT WAS WRONG AND AL THEY SAID WAS SHE WAS HAVING TROUBLE BREATHING. WELL WHEN THE NURSE FINALLY TOOK A LOOK AT HER SHE WASNT BREATHING AT ALL. THEY CODED HER AND THEN BROUGHT HER BACK EVER SINCE THEN SHES HAD MULTIPLE SURGIES AND HAS BEEN HOOKED UP TO A NUMBER IF MACHINES. SHE WAS TRANSFERED TO A CHILDRENS HOSPITAL WHERE SHE WAS DOING BETTER. SHE JUST GOT TO COME HOME BEFORE CHRISTMAS. BUT NOW SHE'S NOT THE SAME SHE HAS A TRACHE TUBE AND FEEDING TUBE AND IS ON A VENILATOR. SHE'S PRETTY MUCH A VEGTABLE NOW. NO ONE IN OUR FAMILY HAS EVER HAD TO DEAL WITH ANYTHING LIKE THIS, AND I FEEL SO BAD FOR MY SISTER WITH HER BEING ONLY 26 AND HAVING TO CARE FOR A CHILD IN HER CONDITION. I WAS WONDERING WAS THERE ANYONE OUT THERE WHO CAN RELATE TO THIS SITUATION AND GIVE ME ADVICE TO GIVE TO HER. THANKS AND GOD BLESS | |
| Name: GEORGE KING | Posted: 2010-01-08 18:12:34 |
| E-Mail: GMKING1234A@AOL.COM | Location: SANANTONIO,TEXAS |
| DOES ANYONE KNOW OF A SUPPORT GROUP IN SANANTONIO OR AUSTIN,TEXAS AREA | |
| Name: April | Posted: 2009-12-27 22:51:53 |
| E-Mail: Fshangel7@aol.com | Location: Cabazon |
| Hi dose anyone ever heard of water on the brain i have it and woundering how long will it take to go away and iam at a feragel state right now where i have to be realy careful i feel like i cant to anything fun like rideing quads like be for | |
| Name: Jennifer Dixon | Posted: 2009-12-26 16:36:17 |
| E-Mail: jdixon1@live.com | Location: Langley, BC |
| Here's to a happy and HEALTHY New Year to all, filled with the fewest hospital trips | |
| Name: jet-jet olande | Posted: 2009-12-04 06:05:39 |
| E-Mail: jaolande75@yahoo.com | Location: philippines |
| i have a 1 and 7month old baby girl,diagnosed having hydocephalus and operated during her 3months.we need support from your generous heart for our baby.GOD bless... | |
| Name: Monte Timm | Posted: 2009-11-26 01:03:45 |
| E-Mail: momtetimm@yahoo.com | Location: Casper Wyoming |
| tried to take your survey it has a broken link I have e-mailed you and hope to hear from you soon |
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| Name: janice | Posted: 2009-11-21 21:08:28 |
| E-Mail: janmar77506@yahoo.com | Location: houston,texas |
| my two granddaughter was born at 24weeks.Soon after she was diagnosed with hydrocephalus.She had a VPshunt placed at 3months and has had 4 shunt revisions.It been 1yr and 4months since her last revisions in July 2008. | |
| Name: phil | Posted: 2009-11-16 06:49:03 |
| E-Mail: pastorey@hotmail.com | Location: uk |
| hi all, over in the uk with the worldwide spread of swine flu and a pandemic expected here very soon all people with underlying healthcare problems e.g. hydro (like my son) have been asked to come in for the vaccination. My question is this is someone with hydro anymore likely/unlikely to fight this flu? Any views will be most welcome Regards |
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| Name: Jennfier | Posted: 2009-11-07 15:46:40 |
| E-Mail: jennifer_lucas@roadrunner.com | Location: Kentucky |
| My name is Jennifer. I am 25. I have congenital hydrocephalus. I would like to talk with others like it. I would like to talk to others on a regular basis, if you would like to talk on a regular basis, please message me. Thanks, Jennifer 25 with congenital hydrocephalus |
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